Hypotheses of study:
1. We presume that the adapted version of ICF-CY will be suitable for following the functional condition of children with CP.
2. We presume that in many cases it is the environment rather than their condition that make dysfunctioning persons disabled.
3. We presume that the new tool (ICF-CY) will be suitable to measure improvement in the quality of life which is immeasurable by existing instruments.
Current stage of research:
I made a general ICF-CY-based survey for CP child to show how we can fit the codes
into CE practical work. ( You can see an example in the annexes, annex I.)
I made an ICF-CY-based Assesment Form for CP child what belongs to 292 codes in 8
different areas:
1.Muscle tone 7 codes
2.Sensory organs
- seeing 5 codes
- hearing 5 codes
- swallowing, chewing 5 codes
- other purposeful sensing 4 codes
3.Mobility
- changing and maintaining body position 11 codes
- sitting 3 codes
- standing-walking 16 codes
- manipulation 13 codes
~ writing 3 codes
- communication 25 codes
4. Mentality
- global mental function 15 codes
- temperament and personality functions 8 codes
- energy and drive functions 3 codes
- attention functions 4 codes
- memory functions 3 codes
- psychomotor functions 5 codes
- emotional functions 3 codes
- thought functions 5 codes
- general tasks and demands 8 codes
- interpersonal interactions 19 codes
5. Self-care
- washing oneself 9 codes
- toileting 5 codes
- dressing 6 codes
- eating 6 codes
- household tasks 4 codes
6. Recreation and leisure 15 codes
7. Enviromental factors
- products and technology 15 codes
- air qality 2 codes
- support and relationships 8 codes
- attitudes 9 codes
- services, systems and policies 7 codes
+ 8. Learning and applying knowledge (for school ages children)
Basic learning
- copying 10 codes
- rehearsing 2 codes
- learning to read 2 codes
- learning to write 2 codes
- learning to calculate 2 codes
Applying knowledge
- focusing attention 2 codes
- thinking 2 codes
- reading 2 codes
- writing 2 codes
- calculating 2 codes
- solving simple problems 1 code
- solving complex problems 1 code
- making decisions 1 code
Education 5 codes
(You can see a short example in the annexes, annex II.)
Budapest, 15.06.2010.
ANNEXES
Annex I.
General ICF-CY-based survey for CP child
Personal factors
Name: Ch. E. Personal
Sexuality: female factors
DOB:12.11.1996.
To ethnic: black
Bringing up: adopted
Mother’s name: J. E. (Kenya)
Father’s name: W. E. (Switzerland)
Live: Switzerland
Diagnosis: DPL, more effected on the left side
Weight at birth: 1500g
Weeks of gestation : 28
Family anamnesis (life history): no information
Inclination to fits: -
Medication: -
Allergy: -
Operation (surgery): tracheotomia in 1998.
Previous treatment: fisikoth.,ergoth.,hypoth., swimming, CE
General description
Generally age-appropriate body size, her lower body is overweight a bit. Her feet are shorts and showed deformity, that is why she can not walk barefoot.
She dribble.
She is a friendly and happy girl, but a real teenager, who has sometimes wavering mood.
She attends a special school, grade 5. in her home.
Body functions
b1263.1 Psychic stabiliy
b1266.1 Confidence (because of dribble)
b1302.2 Appetite
b1600.1 Form of thought
b1644.1 Insight (fatness)
b1646.1 Problem-solving
b1721.1 Complex calculation
b28015.1 Pain in lower limb (barefoot)
b5104.2 Salivation
b7203.3 Mobility of tarsal bones
b7304.2 Power of muscles of all limbs
b770.2 Gait pattern functions (spastic gait)
b830.1 Other functions of the skin
(sweating, resulting body odour)
Activities and participation
d2402.1 Handling responsibilities
d4101.2 Squatting (standing up from this p.)
d4152.2 Maintaining a kneeling position
d4154.3 Maintaining a standing position
d4301.4 Carrying in the hands (without stick)
d4303.0 Carrying on shoulders, hip and back (backpack)
d4351.2 Kicking
d465.2 Moving around using equipment (stick)
Self-care
d5203.3 Caring for fingernails
d5204.4 Caring for toenails
d5402.2 Putting on footwear
Enviromental factors
e1201.+3 Assistive products and technology for personal indoor and outdoor
mobility and transportation (stick)
e1401.+3 Assistive products and technology for culture, recreation and sport
(trycykle for long distance)
e1500.+4 Design, construction and building products and technology for
entering and exiting buildings for public use (Switzerland)
e1501.+4 Indoor (lifts)
e1550.+4 Buildings for private use (home for handicapped)
e310.+4 Immediate family (adoptive parents)
e320.+3 Friends
e325.+3 Acquaintances, peers, colleagues, neighbours and community
members (special school)
e345.0 Strangers
e445.1 Individual attitudes of strangers (handicapped)
e460.1 Societal attitudes (black skin)
e5551.+4 Association and organizational services (summer camp for
handicapped)
e5750.+4 General social support services (financing conductive education)
Annex II.
1. We presume that the adapted version of ICF-CY will be suitable for following the functional condition of children with CP.
2. We presume that in many cases it is the environment rather than their condition that make dysfunctioning persons disabled.
3. We presume that the new tool (ICF-CY) will be suitable to measure improvement in the quality of life which is immeasurable by existing instruments.
Current stage of research:
I made a general ICF-CY-based survey for CP child to show how we can fit the codes
into CE practical work. ( You can see an example in the annexes, annex I.)
I made an ICF-CY-based Assesment Form for CP child what belongs to 292 codes in 8
different areas:
1.Muscle tone 7 codes
2.Sensory organs
- seeing 5 codes
- hearing 5 codes
- swallowing, chewing 5 codes
- other purposeful sensing 4 codes
3.Mobility
- changing and maintaining body position 11 codes
- sitting 3 codes
- standing-walking 16 codes
- manipulation 13 codes
~ writing 3 codes
- communication 25 codes
4. Mentality
- global mental function 15 codes
- temperament and personality functions 8 codes
- energy and drive functions 3 codes
- attention functions 4 codes
- memory functions 3 codes
- psychomotor functions 5 codes
- emotional functions 3 codes
- thought functions 5 codes
- general tasks and demands 8 codes
- interpersonal interactions 19 codes
5. Self-care
- washing oneself 9 codes
- toileting 5 codes
- dressing 6 codes
- eating 6 codes
- household tasks 4 codes
6. Recreation and leisure 15 codes
7. Enviromental factors
- products and technology 15 codes
- air qality 2 codes
- support and relationships 8 codes
- attitudes 9 codes
- services, systems and policies 7 codes
+ 8. Learning and applying knowledge (for school ages children)
Basic learning
- copying 10 codes
- rehearsing 2 codes
- learning to read 2 codes
- learning to write 2 codes
- learning to calculate 2 codes
Applying knowledge
- focusing attention 2 codes
- thinking 2 codes
- reading 2 codes
- writing 2 codes
- calculating 2 codes
- solving simple problems 1 code
- solving complex problems 1 code
- making decisions 1 code
Education 5 codes
(You can see a short example in the annexes, annex II.)
Budapest, 15.06.2010.
ANNEXES
Annex I.
General ICF-CY-based survey for CP child
Personal factors
Name: Ch. E. Personal
Sexuality: female factors
DOB:12.11.1996.
To ethnic: black
Bringing up: adopted
Mother’s name: J. E. (Kenya)
Father’s name: W. E. (Switzerland)
Live: Switzerland
Diagnosis: DPL, more effected on the left side
Weight at birth: 1500g
Weeks of gestation : 28
Family anamnesis (life history): no information
Inclination to fits: -
Medication: -
Allergy: -
Operation (surgery): tracheotomia in 1998.
Previous treatment: fisikoth.,ergoth.,hypoth., swimming, CE
General description
Generally age-appropriate body size, her lower body is overweight a bit. Her feet are shorts and showed deformity, that is why she can not walk barefoot.
She dribble.
She is a friendly and happy girl, but a real teenager, who has sometimes wavering mood.
She attends a special school, grade 5. in her home.
Body functions
b1263.1 Psychic stabiliy
b1266.1 Confidence (because of dribble)
b1302.2 Appetite
b1600.1 Form of thought
b1644.1 Insight (fatness)
b1646.1 Problem-solving
b1721.1 Complex calculation
b28015.1 Pain in lower limb (barefoot)
b5104.2 Salivation
b7203.3 Mobility of tarsal bones
b7304.2 Power of muscles of all limbs
b770.2 Gait pattern functions (spastic gait)
b830.1 Other functions of the skin
(sweating, resulting body odour)
Activities and participation
d2402.1 Handling responsibilities
d4101.2 Squatting (standing up from this p.)
d4152.2 Maintaining a kneeling position
d4154.3 Maintaining a standing position
d4301.4 Carrying in the hands (without stick)
d4303.0 Carrying on shoulders, hip and back (backpack)
d4351.2 Kicking
d465.2 Moving around using equipment (stick)
Self-care
d5203.3 Caring for fingernails
d5204.4 Caring for toenails
d5402.2 Putting on footwear
Enviromental factors
e1201.+3 Assistive products and technology for personal indoor and outdoor
mobility and transportation (stick)
e1401.+3 Assistive products and technology for culture, recreation and sport
(trycykle for long distance)
e1500.+4 Design, construction and building products and technology for
entering and exiting buildings for public use (Switzerland)
e1501.+4 Indoor (lifts)
e1550.+4 Buildings for private use (home for handicapped)
e310.+4 Immediate family (adoptive parents)
e320.+3 Friends
e325.+3 Acquaintances, peers, colleagues, neighbours and community
members (special school)
e345.0 Strangers
e445.1 Individual attitudes of strangers (handicapped)
e460.1 Societal attitudes (black skin)
e5551.+4 Association and organizational services (summer camp for
handicapped)
e5750.+4 General social support services (financing conductive education)
Annex II.
ICF-CY-based Assesment Form for CP child (first part of it)
CODE NUMBER DESIGNATION COMMENT
Muscle tone:
b7350.
Isolated muscles
b7351. One limb
b7352. One side of body (hemi)
b7353. Lower half of body
b7354. All limbs
b7355. Trunk (back)
b7356. Whole body
Others:
Sensory organs:
Seeings:
b21000. Binocular acuity of distant
b21001. Monocular …
b21002. Binocular acuity of near
b21003. Monocular …
d110. Watching
Others:
Hearing:
b2300. Sound detection
b2301. Sound discrimination
b2302. Localisation of soundsource
b2303. Lateralization of sound
d115. Listening
Others:
Swalloing, chewing:
b5101. Biting
b5102. Chewing
b5103. Mani. of food in the mouth
b51050. Oral swalloing
b5106. Vomiting
Others:
Other purposeful sensing
d1200. Mouthing
d1201. Touching
d1202. Smelling
d1203. Tasting
Others:
MOBILITY
CODE NUMBER DESIGNATION COMMENT
Changing and maintaining body position:
d4100. Lying down
d4101. Squatting
d4102. Kneeling
d4107. Rolling over
d4150. Maintaining a lying positio
d4151. Maint. a squatting position
d4152. Maint. a kneeling position
d4155. Maint. a head position
d4201. Transferring os. while lying
d4550. Crawling
d4551. Climbing
Others:
Sitting:
d4103. Sitting
d4153. Maint. a sitting position
d4200. Transferring os. while sit.
Others:
Standing-walking: Equipment needed
d4104. Standing
d4105. Bending
d4106. Weight shifting
d4154. Maint. a standing position
d4301. Carrying in the hands
d4302. Carrying in the arms
d4303. Carrying on back, shoulder
d4500. Walking short distances
d4501. Walking long distances
d4502. Walking on diff. surfaces
d4503. Walking around obstacles
d4552. Running
d4553. Jumping
d4600. Mov. around within home
d4601. Mov. other than home
d4602. Mov. around outside
Others:
CODE NUMBER DESIGNATION COMMENT
Manipulation:
d4300. Lifting
d4305. Putting down objects
d4400. Picking up
d4401. Grasping
d4402. Manipulating
d4403. Releasing
d4450. Pulling
d4451. Pushing
d4452. Reaching
d4453. Turning or twisting hands
d4454. Throwing
d4455. Catching
d446. Fine foot use
Writing
d1450. Acquiring writ. implements
d1451. Acqu. symbols, char., alph.
d1452. Acqu. words and phrases
Others:
Communication:
b3100. Production of voice
b3101. Quality of voice
b320. Articulation functions
b3300. Fluency of speech
b3301. Rhythm of speech
b3302. Speed of speech
b3303. Melody of speech
b3400. Production of notes
d1330. Acqu. single words, symbol
d1331. Combining words into phr.
d1332. Acquiring syntax
d3100. Responding to human voice
d3101. Simple spoken messages
d3102. Complex spoken messages
d330. Speaking
d331. Pre-talking
d332. Singing
d3350. Producing body language
d3351. Prod. signs and symbols
d3352. Prod. drawings, photogr.
d3503. Conversing with 1 person
d3504. Con. with many people
d3600. Using telecommuni. devices phone, computer, telex m.
d3601. Using writing machines typewriter, computer
d3602. Using communic. technique reading lips
Others:
4 comments:
Is this the second part of the dissertation, Laszlo? I am a bit confused!
I'm afraid that the first and the second hypothesis had already been studied and validated. As to the third hypothesis, there definitely are QOL measurements that are valid and reliable (see for example my last post on Norman's Blog) . The body of knowledge regarding QOL and HQOL of population with cp is increasing constantly and the research literature is reach and varied.
I must say that I'm a little puzzled, as PhD dissertation should be approved only if it contibutes to evidence based novelty to the existing knowledge
Thanks for your comments,
yes this is the second part of the work, let's call it presentation. I did not refer to it as a dissertation document in my introduction. I called it "work".
It is a written document about her (she is a PhD student) present work.
Rony, thank you very much for your note. You are right ( sorry, let's say I agree with you) and possibly, her directors of studies will also note you just said.
Laszlo
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